My headaches are getting worse everyday, like how they were last summer. They last for hours and the worse they get, the less coherent I am. I went to the emergency room last year- they thought I was having a stroke. Noise drove me crazy, I was stuttering and slurring my words, my body was numb- and my head, of course, was breaking me apart.
My Lyme Specialist just posed the question- with addition to my eye pain, if I have severe migraines. I am being booked for a nuclear brain scan, and I was prescribed a triptan which I am not even allowed to take yet because the pharmacist has to check if there are serious interactions with my hundreds of other medications. He wondered why no one had considered this before- he once had a lady with similar symptoms. the paralysis, pain, everything, and after the scan, they discovered there was blood flow in only half of her brain.
The numbness I have had in toes, my other hands- some of it is the Lyme, but other issues could potentially be these headaches. I am unsure of what is related.
I don’t know what to do, writing this even hurts, staring, breathing, everything. I have so much work to do, but I actually want to run my head into a truck.
And there are these annoying floaty things in my eye.
Nuclear brain scan? Holy moly. I’m glad you’re getting a thorough workup. Those are some scary sounding “migraines”.
My migraines went into overdrive after I caught Lyme. My theory is that it or my body’s response to it messed with my blood vessels. I did recently see an abstract of an article about anti-neuronal antibodies in people who have had lyme disease. Some ugly s**t.
As a side note – I did find that elavil (LOW dose) worked ok for the migraines. Takes ‘em down a notch and they’re less frequent. It’s something I have to take every day though, so it’s another addition to the crowded pill organizer.
I hope you find something that is treatable.
I really hope you are doing better! All I can say is I understand what Lyme can do to you, been living with it and coinfections for over 18 years now. Stay Strong!