In the mean time, I am falling apart.

My headaches are getting worse everyday, like how they were last summer. They last for hours and the worse they get, the less coherent I am. I went to the emergency room last year- they thought I was having a stroke. Noise drove me crazy, I was stuttering and slurring my words, my body was numb- and my head, of course, was breaking me apart.

My Lyme Specialist just posed the question- with addition to my eye pain, if I have severe migraines. I am being booked for a nuclear brain scan, and I was prescribed a triptan which I am not even allowed to take yet because the pharmacist has to check if there are serious interactions with my hundreds of other medications. He wondered why no one had considered this before- he once had a lady with similar symptoms. the paralysis, pain, everything, and after the scan, they discovered there was blood flow in only half of her brain.

The numbness I have had in toes, my other hands- some of it is the Lyme, but other issues could potentially be these headaches. I am unsure of what is related.

I don’t know what to do, writing this even hurts, staring, breathing, everything. I have so much work to do, but I actually want to run my head into a truck.

And there are these annoying floaty things in my eye.



Filed under rant

3 responses to “In the mean time, I am falling apart.

  1. Nuclear brain scan? Holy moly. I’m glad you’re getting a thorough workup. Those are some scary sounding “migraines”.

    My migraines went into overdrive after I caught Lyme. My theory is that it or my body’s response to it messed with my blood vessels. I did recently see an abstract of an article about anti-neuronal antibodies in people who have had lyme disease. Some ugly s**t.

    As a side note – I did find that elavil (LOW dose) worked ok for the migraines. Takes ’em down a notch and they’re less frequent. It’s something I have to take every day though, so it’s another addition to the crowded pill organizer.

    I hope you find something that is treatable.

  2. uacommunicationresearch


    My name is David Keating and I am a student at the University of Arizona. I am working with Dr. Steve Rains, who is an Assistant Professor in the Department of Communication. We are conducting a study about blogging and health and would greatly appreciate it if you would complete our survey. We found your blog by conducting a general search for blogs about health. We would like to know more about your experience blogging.

    Our survey takes about 20 minutes to complete. To participate, you must be (a) 18 years of age or older and (b) have made a blog entry in the past 30 days.

    If you meet these requirements and would like to participate, please click the link below. The study will be conducted online and the link will take you to the first webpage of the survey.

    [Note: You may copy and paste the address directly into your web browser (i.e., Internet Explorer) to access the study.]

    If you have any questions or concerns about the study, you may contact Dr. Rains at:

    Thanks for your consideration!

    Best Regards,

    David Keating
    David Keating
    Department of Communication
    University of Arizona

  3. I really hope you are doing better! All I can say is I understand what Lyme can do to you, been living with it and coinfections for over 18 years now. Stay Strong!

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s